My Journey
Two Months Post-Op: Prayers, Delays, and The Surgeon’s Good News
Thank you everyone for praying for my appointment with the neurosurgeon in Colorado. The prayers were needed. Travel was hard on my body. We flew Sunday and rested Monday. Tuesday was appointment day. We were up at 4:30 a.m. our time to take a Lyft to the clinic across from the hospital for x-rays. It…
Back To Colorado
I’ve just been hanging on and trying to keep it together until I see my surgeon again. My mom and I flew to Colorado yesterday for the follow-up tomorrow. It took me over an hour to get through TSA at PDX. I can walk short distances but the neck brace prevents me from looking down.…
Man of Sorrows
It’s hard to explain and put into words, but I sometimes find myself not quite feeling like the me I know. My body is under an enormous amount of stress and changes. I don’t even have a clear understanding of how the surgery is impacting my body right now. The pain is there so strong…
Staples are Out!
I got new x-rays and my staples out!! There was absolutely no damage when I fell. I just need to move slower. The skin around the staples was tender and ready for them to come out, so it was not that painful. I was able to have my neck brace off for a few mins…
Third Brain Surgery & Neck Fusion Completed.
Hello Friends, the surgery date was complicated. We showed up on the Monday the 08/08 for surgery. The insurance approved the surgery for my brain, but not the neck. There was some paperwork that was missed so the neck fusion was still pending. They still had me go through all the motions like I was…
New Surgery Date With Neck Fusion
It’s been a long few days. We were supposed to fly out yesterday, 8/22/25, to head to CO and I was supposed to have surgery on Monday, 8/25/25. However, the Upright MRI that we drove to San Jose for came back with some new findings that have changed and delayed the surgery. We were able…
Pre-Op Update
During my post-op I had some bloodwork done. I received the results the following day, which shows that my liver is damaged. I called my doctor, but he was out of the office and I spoke with an on call doctor who doesn’t know me. Before the second surgery I hardly took any medication, now…
Last Minute Travel For Specialized Scans
Update: I had my pre-op yesterday. They did an EKG, chest xray, bloodwork, MRSA swap, etc. Now, that’s off my list! Since the neurosurgeon thinks undiagnosed EDS is why my surgeries keep failing, I’m going for a special upright MRI, before the surgery on the 25th. They’re trying to decided if my neck is unstable…
Third Times a Charm
Friends, thank you for praying with me over this appointment. My neurosurgeon is very kind and compassionate and understands what is happening in my body. The long story short, I need another brain surgery. My neurosurgeon explained the MRI shows that directly under the titanium plate the tissue is collecting fluid like a blister. It’s…
Here We Go Again???
Friends, It’s hard for me to write this because I’m having to accept and acknowledge that a third brain surgery is rushing at me like a freight train. I wanted to wait until I had more answers. I have been struggling with migraine/head pain, nausea, blurry vision, worsening balance, etc for over two months now.…
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Weathering Chiari 