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My Journey

Answered Prayers

Yesterday, at my OHSU Neurology appointment there was a HUGE answer to prayer. The neurologist took ALS off the table! He said that theoretically I could develop ALS down the road, but that he would be shocked if that happened. Benign Fasciculation Syndrome (what they diagnosed me with there a few months ago) and ALS…

Enough

It has been six months since I had brain surgery. Sometimes it feels like it has been so much longer, other times it feels like it happened yesterday. I’m grateful for the surgery, for all the symptoms it has relived. Mainly the horrible head pain in the back of my head. The symptoms are still…

Colorado & OHSU

Last month, I had my two month follow up in Colorado, with the neurosurgeon. I had another MRI and then met with the neurosurgeon to review where I was at in my recovery. The neurosurgeon said the MRI looked really good and that my healing was ahead of where he thought I would be in my…

2 Month Update

It is hard to believe it has already been almost two months since I had brain decompression surgery. A few weeks ago I started physical therapy for my neck, it’s still super stiff and sore. I still cannot move my head up or down. I will not be cleared for that motion until I meet…

Valley of Blessings

It is hard to believe that it has been four weeks (yesterday) since surgery. It feels like it happened yesterday.  My pain is under control for the most part, my neck still bothers me a lot and there are times where I feel like I can feel every strand of hair on my head. I…

Zipperhead

April 2nd Staples are out!! Shae’s primary doctor and I both assured her that getting her staples removed wouldn’t feel too uncomfortable. I’ve had them three times, after C-sections, and I just remember feeling relief. Well, staples in your head are a different story! Shae thought that it really hurt! Her incision looked pretty angry…

Spring Flowers for Shae

Shae continues to heal. Her pain yesterday was intense, but she is doing better today. Pray for a controlled pain level. She wakes up every couple of hours for medication, but was able to sleep through most of the night. Shae rests a lot during the day. Spring has sprung and with that, SUN! Her…

Wild Winds

Shae and I arrived home at noon yesterday, a day later than we planned. Our third and last leg of our flight was quite the adventure! Thank you Jesus for entrusting us with such skilled pilots who handled everything so well, a safe landing, friends who are like family, an awesome ER doc, and Shae’s…

Discharged

Yup, you read that right, Shae was discharged! We’re so thankful that her healing was “on schedule” and they let her leave the hospital. She didn’t have any BP crashes leading up to discharge the night before, which may have left her in one more day. The incision pain keeps her up at night but…

We’re with you Shae!

You guys, thank you so much for rallying around Shae. Your prayers are felt! I’m happy to report that today Shae walked around the entire floor and ate pizza for lunch! This is huge news! It’s a good sign her healing is taking place. Shae has been on the ICU floor since she left the…

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