Weathering Chiari

Update: I had my pre-op yesterday. They did an EKG, chest xray, bloodwork, MRSA swap, etc. Now, that’s off my list!

Since the neurosurgeon thinks  undiagnosed EDS is why my surgeries keep failing,  I’m going for a special upright MRI, before the surgery on the 25th. They’re trying to decided if my neck is unstable and I need to have it fused. My mom called around found the closest place is in Renton, WA but they’re a 5 week wait. Renton referred us to a clinic in San Jose, CA that can get me in next week. 

We are now driving down to CA to get this MRI, so the surgeon can see it before surgery. Luckily, more likely God arranged, we have family friends  that live in the area that we can stay with. 

We are going to drive down Sunday, get the scans on Monday, and return Tuesday. Then we leave that Friday for CO. 

It’s going to be a lot for my body. 

This is all falling into place this morning and there’s still a lot of moving pieces and we are having to roll with the waves. Please pray for us as we are trying to accomplish everything that needs to be done before the surgery date.  My mom has been spending everyday on the phone going over details and the list of calls keeps growing. 

Please pray for clear communication between all the doctor’s offices, insurance, case managers, etc. It is overwhelming how many things need to be done and arranged for this to all workout.

Pray for safe travels as we go to CA and back and then on to CO. 

Pray for all the moving pieces and everything that is still up in the air. All the things that need to come together. 

Thank you for all your prayers and support. My friend made a GoFundMe to help with this very unexpected and fast approaching brain surgery.

3rd Brain Surgery Support

May God Bless you,

Shae 💜